Patient Advocacy Groups

The links below will connect you to sites containing information and support from United States and international Gaucher disease groups and patient support organizations.

United States

Children’s Gaucher Research Fund

National Gaucher Foundation (USA)

National Organization for Rare Disorders (USA)

National Tay-Sachs & Allied Disease Association (USA)

Gaucher Cells

Gaucher cells accumulate and displace healthy normal cells in bone marrow and organs such as the liver and spleen. This accumulation causes a host of signs, including skeletal deterioration, anemia, and organ dysfunction.

Gaucher Registry

For more than a decade, the Gaucher Registry has been a global resource to the medical and patient communities, helping to improve outcomes in patients with Gaucher disease. Learn more about participating in the Gaucher Registry ยป